BB Blog
7 Years Today I Had My Second Mastectomy with Double Breast Reconstruction...
Posted by Emilienne Rebel on
...I awoke to a super heated room following a 9 hour surgery feeling pretty battered but relieved to open my eyes. Confined to bed with leg pressure pumps on both legs; four drains (two front and back); a catheter; 'lying' on my back but feeling sticky and sore from the skin removal. The room heated to help the skin to heel without having too much pressure from dressings.
That first night was okay I think drifting back and forth in consciousness with the morphine I had at my finger tip. By the next day I was feeling very sick... but with so much restriction it was very hard to be physically be sick.
I was told the morphine was making me feel sick so I immediately stopped using it and from day 1 was only using paracetamol to ease the pain and discomfort. I had minimal pain which surprised me and the surgery had gone well.
I'd had a second risk-reducing mastectomy and then had part muscle removed from both sides of my back and carried around to the front to be used as a flap to hold implants. I was lucky my skin was good enough to have normal breast implants and not expanders. Even on the radiated side. Then skin removed from my back to use over my new breasts.
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- Tags: Breast Cancer, cancer, mastectomy, surgery
Cancer Cliches to Avoid...
Posted by Emilienne Rebel on
Everyone going through some kind of cancer trauma thinks differently and reacts in their own way... I personally didn't think of it as a 'battle' as I had no choice wether I lived or died in reality. I couldn't actively punch my Breast Cancer in the face or divorce it. I did however have a choice as to how I treated others, how I chose to conduct myself and wether I followed the advice of the medical experts treating me... but I don't consider myself a fighter or brave. Following my treatments I was described as 'broken' and 'closed for repair' and wow did that hurt.
So whilst I think sometimes there is never a right thing to say, there is often a wrong thing to say.
Thank you to the BBC article with Macmillan for highlighting the : 'Cancer cliches to avoid: I'm not 'brave'
"Fighter, warrior, hero - some of the terms you might see used to describe people with cancer.
But according to a new survey, for some with the illness the words are seen as inappropriate rather than up-lifting. The UK poll by Macmillan Cancer Support of 2,000 people who have or had cancer found "cancer-stricken" and "victim" were also among the least-liked terms. The charity said it showed how "divisive" simple descriptions of cancer can be.
Women's Pretty Cancer Hats Scarves Head Wraps UK
Posted by Emilienne Rebel on
New Liberty Print Cancer Bold Beanies Hats on their way! Check out our new range of head scarves and head wraps in gorgeous Liberty prints with a practical reversible plain side.
Silky soft cotton chemotherapy hats, scarves, head wraps and PICC line sleeve covers especially designed for comfort by a UK Breast Cancer survivor.
Bold Beanies cancer head wear and accessories are made using high quality thin cotton stretchy material from Liberty Art Fabrics.
Suitable to wear as a breathable, temperature controlling night cap to protect from the cold (for a good nights sleep) as well as daywear to make a cancer patient feel more comfortable and confident to face their day.
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- Tags: beanie, Breast Cancer, cancer, chemo, comfy, coton, cotton, hair loss, hat, headwear, headwrap, scarf
Ladies Antibacterial Cotton Soft Comfy Breathable Cancer Headwear
Posted by Emilienne Rebel on
Bold Beanies now offer a wide range of silky soft cotton hats, headscarves and head wraps suitable for sensitive scalps from cancer chemotherapy treatments, for women with hair or hair thinning to more permanent Alopecia Areata.
Our headwear range is made using the finest natural fabric and to the highest quality. The thin stretchy cotton material is practical, antibacterial, breathable, easy to put and keeps the head at an even temperature.
Our beanies, head wraps, head scarves, picc line covers are beautiful using the best Liberty Art Fabrics for style as well as comfort and a complete range of plain colours to co-ordinate with any outfit and make you feel more comfortable.
Have a wide range of headwear options for your course of treatment including beanies for day and night wear, head wraps and head scarves as well as a wig to see you through. Bold Beanies are perfect as a comfy breathable, sweat wicking layer under other woolly hat, hijabs, turbans and all types of helmets and hard hats.
Made in the UK by a Breast Cancer Survivor. Free UK and worldwide shipping available.
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- Tags: Alopecia, beanie, beanies, Breast Cancer, cancer, chemo, chemotherapy, cotton, Hair Loss, hat, hats, headscarf, headwear, headwrap, liberty, Liberty Art Fabrics, picc, scarf, sleep, UK, women
Dry Mouth From Chemo
Posted by Emilienne Rebel on
Dry Mouth from Chemo? This is a common side effect of many chemotherapy drugs and something I really suffered with, so I was interested to read this article from a dental hygienist Christina, who underwent chemo herself.
"While Christina has shared her blog about wigs, chemo ports, and cancer keepsake boxes, perhaps her area of highest expertise is in chemo and dry mouth. Not only did Christina go through dry mouth as a side effect of chemo (as well as other oral complications), but she is a dental hygienist and an expert in how to keep your mouth healthy and clean!"
I lost my saliva when I had chemotherapy for breast cancer (stage 3 advanced) and it was a very unpleasant side effect of the treatment. I would describe it to anyone as like eating dry All Bran (a dry breakfast cereal in small stick-like form) anytime I tried to eat something. I was given a sweet lemon tasting artificial saliva but it was really horrible. I ended up just taking sips of water all day to refresh my mouth. I had my chemotherapy 11 years ago and to this day I still suffer with a dry mouth and constantly need a drink with me otherwise I feel very uncomfortable. My gums also receded quite significantly during my treatment, so I'm always paranoid with every dentist visit as to what they say, but so far all okay... although I'm told I brush my teeth too hard... which I really don't (I'm very careful about that), so I'm guessing that's a continued side effect.
"In addition to a host of other unpleasant side effects, chemo can cause dry mouth, mouth sores, difficulty swallowing, and even tooth decay. Dry mouth is especially troublesome because, not only is it uncomfortable, but it creates an acidic environment that promotes tooth decay and makes it hard to chew food.
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- Tags: chemo, chemotherapy